We had a great meeting in January! We broke off into groups to discuss some of the research questions identified by our Stakeholder Advisory Council. Looking forward to the next meeting on Monday February 24th at 12pm-1:30pm CT.
Patient Centered Outcomes Research for Dementia Care
The importance of a palliative care approach for people living with dementia is increasingly recognized, yet care is fragmented and the care needs of these individuals and their caregivers are often poorly addressed. According to the World Health Organization (WHO), palliative care is a multidisciplinary integrated approach to care that emphasizes the quality of life of patients and their families confronted with life-threatening illnesses.
This is why we have built a sustainable alliance of key stakeholders who are engaged in the development, execution, and dissemination of patient-centered outcomes research (PCOR) for better palliative care for persons living with dementia and their families.
This resource section contains the materials from the 2019 Patient-Centered Outcomes Research Symposium.
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We will gather at the Alzheimer's Association (10223 McAllister Fwy, San Antonio, TX 78216) at noon-1:30. Lunch will be provided - please join us to celebrate and learn!
Last month James, Carole, and Sara had the opportunity to attend the PCORI Annual Meeting in DC where they learned so much at the informative sessions. They will be sharing their experiences at the Stakeholder Advisory Council meeting in November.