Patient Centered Outcomes Research for Dementia Care 

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The importance of a palliative care approach for people living with dementia is increasingly recognized, yet care is fragmented and palliative care needs of these individuals and their caregivers are often poorly addressed. According to the World Health Organization (WHO), palliative care is a multidisciplinary integrated approach to care that emphasizes the quality of life of patients and their families confronted with life-threatening illnesses. 

This is why we are building a sustainable alliance of key stakeholders who are engaged in the development, execution, and dissemination of patient-centered outcomes research (PCOR) for better palliative care for persons living with dementia and their families.


Available resources

2019 Annual Symposium

2019 Annual Symposium

This resource section contains the materials from the 2019 Patient-Centered Outcomes Research Symposium

Discussions Boards

Discussions Boards

Enter this resource section to engage in discussion on dementia care research and practice.

Webinars for PCOR

Webinars for PCOR

Enter this resource section to view webinars on patient-centered outcomes research.


Site announcements

PCORI Annual Meeting in DC

by Sara Masoud -

Last month James, Carole, and Sara had the opportunity to attend the PCORI Annual Meeting in DC where they learned so much at the informative sessions. They will be sharing their experiences at the Stakeholder Advisory Council meeting in November. 

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